Dylan continues to do ok – she’s hanging in there and we are taking things day by day. Because her pons (brainstem) seems to be somewhat stable, we decided to do 5 radiation treatments on her spine. This was strictly palliative and we finished a little over a week ago. She seems to have less pain as a result, and we got to see the amazing radiation department staff, as well as one of our favorite doctors, Dr. Jerry Jaboin. Her mobility is still awful and she needs 24/7 care, but we are working hard to find some joy in each day for her.
We continue to be blown away by the cards and gifts that are STILL coming for Dylan! Thank you so much for the generosity shown to Dylan. Special thanks for those of you that sent something for Mason as well! We appreciate everything so much and continue to feel the love. ❤️❤️
I’m feeling almost thankful for the six week break from school for Mason – it is a blessing that he will get to spend this time home with Dylan. Hoping everyone stays healthy and continued thanks for the nonstop support!
