DIPG

Six Month Mark

The six month mark came and went. Six months without Dylan. It still feels incredibly surreal. I look at pictures from years past and wonder how our beautiful, healthy daughter could be gone. We continue to put one foot in front of the other. Some days are harder than others. I relish the days that […]

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dylan sitting with her cat

Dylan Jude Harrell Memorial Video

I am happy to finally be sharing more information about Dylan’s foundation and her memorial video. With the bakery changing its name to Dylan’s Cottage Bakery, it felt like the right time to honor our sweet girl. The pain of losing her is very raw, and she is missed so much. I watch this video […]

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Harper and Penny cousins

Dear Harper

Dear Harper, Penny has two sister cousins: you and Dylan. You were the first girl born on both sides of the family, at exactly eight weeks to the day before Penny. Then 7 months later, Dylan was born, and Penny was sandwiched on both sides of the family by girls. Girls that were so close […]

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Casey holds Dylan while Dylan plays with her necklace

One Month

One month down.  Honestly, it has been a blur.  It’s like time stood still and was on fast forward at the same time.  I think I floated through the first week, then reality slowly started to sink in.  I can’t even explain the pain of not having Dylan physically present with us.  Jeff, Mason, and […]

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Dylan sits looking out at the ocean

Dylan Update 4.10.20

Our sweet Dylan, love of our lives, passed away yesterday after a 20-month battle with DIPG. We wouldn’t wish this sorrow and pain upon anyone, yet we also have relief that she’s free from her broken body. We have no doubt she’s running, jumping and dancing now. We did promise to Dylan that we will live […]

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Dylan update 3.14.20 DIPG warrior

Dylan Update 3.14.20

Dylan continues to do ok – she’s hanging in there and we are taking things day by day. Because her pons (brainstem) seems to be somewhat stable, we decided to do 5 radiation treatments on her spine. This was strictly palliative and we finished a little over a week ago. She seems to have less […]

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dylan update 2.20.2020

Dylan Update 2.20.2020

We have a 6-year-old!! So far, Dylan has had an amazing day, being spoiled by a constant stream of gifts and treats! The outpouring of love for our sweet girl is nothing short of amazing. Dylan perked up quite a bit towards the end of last week. We think she cleared the medications from Mexico. […]

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dylan sitting with her cat

Dylan Update 2.12.20

We spent last week in Mexico and Dylan received her 3rd treatment there. She had a rougher time with the treatment this time. They used the ommaya catheter and she seemed to have more of an inflammation response – headache, fatigue, etc. The travel was harder on her as well. She also began to complain […]

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Five Ways My Parenting Has Changed Since My Niece’s Brain Cancer Diagnosis

The day that Dylan was diagnosed with DIPG, by far one of the worst cancers out there, is the worst day of my life thus far. I can vividly remember those days in August 2018. I had an almost 3-month-old and was easing back to work from maternity leave. I also had a one-year-old and […]

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grandma and granddaughter dressed as wonder woman

Meet Grandma Jude

I am Jude, mother of these three amazing and beautiful sisters (I may be slightly biased). Not sure how I got so lucky but I am so proud of the women they have become, and I know I have not expressed this enough. The love and support they have shown each other melts my heart.     […]

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