Dylan Update 4.10.20

Our sweet Dylan, love of our lives, passed away yesterday after a 20-month battle with DIPG.

Dylan laughs while her family tickles her

We wouldn’t wish this sorrow and pain upon anyone, yet we also have relief that she’s free from her broken body. We have no doubt she’s running, jumping and dancing now.

We did promise to Dylan that we will live the rest of our lives for her. We will continue to choose joy and honor her. At the same time, we will not fear death and will look forward to being reunited with her.

Because of the pandemic, there won’t be a memorial service at this time. However, we do have many ideas and plans to honor her. Please do not send any cards, flowers or gifts. We have recently formed the Dylan Jude Harrell DIPG Foundation (more info to come). Consider making a donation to that or one of the other wonderful DIPG organizations. We will continue to help fight for a cure.

Finally, we want to thank you for all the support you have shown Dylan and our family. The love you gave us throughout her entire journey was incredible. Please continue to keep her in your thoughts, say her name, share a memory, and tell someone about her.

Dylan Jude looks out at the ocean on a cruise ship
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10 thoughts on “Dylan Update 4.10.20

  1. So sorry for your tremendous loss. May love, caring, and memories comfort you as you celebrate the life your remarkable daughter. Thank you for sharing your journey with us and please know we will be thinking of you during this time. Please accept our deepest condolences.

  2. There are no words…our condolences. Our thoughts & prayers are with you.

  3. Praying for your family today and in the coming days. What a privilege it has been to get to know Dylan through the blog. Such an incredibly brave young girl. My deepest condolences.

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