This video is from exactly three years ago: December 19th, 2016. Dylan was 2 (almost 3 as her birthday is in February) and was so excited about the pretty dress she received from Grandma. We wanted to post this video to show you the real Dylan. She has lost so much to DIPG, physically. You […]
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Here is the latest update on warrior Dylan- Dylan had her first treatment in Mexico last week – she tolerated things better than expected and now we wait to see if there will be any positive effects from it. We are set to return in early January for a second intra-arterial chemotherapy treatment. It was […]
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It seems like during December, there is a feeling of excitement leading up to the holidays. There can also be a great deal of additional stress and busyness during this time too, with extra events, performances, concerts, open houses….the list goes on and on. Not to mention decorating for the season, buying and wrapping gifts, […]
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I recently made one of our family’s favorite desserts, with the help of Dylan and Penny, of course! I came across this recipe for a caramel turtle candy tart years ago in a magazine. It is rich, decadent, and pretty easy to make. It has always been a hit, and it is one of my […]
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I recently had my first tests and exam for egg donation. The first step is an ultrasound and lab work done 1-3 days after starting your period. The doctor used the ultrasound to see my ovaries and count the follicles in each one. I had three in one and four in the other. That didn’t […]
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Brandon and I went through a round of IVF at the end of June 2018. We knew going in that the chances were very low of having our own child (less than 5% due to my endometriosis), but we felt that we needed to try. I was given very large doses of hormones to give […]
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Dylan had an MRI on Wednesday – the pons is stable; however, nothing could explain some of the new symptoms she’s having. Her oncology team believes it to be radiation effect and pseudo-progression. Jeff and I aren’t really buying that, and time will tell. We know her cancer is diffuse, so our hunch is that it’s active somewhere […]
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When Dylan was diagnosed with DIPG on August 8th, 2018, my mind quit functioning properly. All my thoughts became centered on Dylan and her care and treatment. I had previously been dialed in to my diet and exercise and I instantly lost the brain power to worry about my food. Now that we are fifteen […]
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We wish we weren’t doing this. Not exactly the type of opening post they suggest in Blogging 101. But now that we’ve made you feel so welcome, let us explain. We wish we were humming along in our day to day lives, never giving a thought to putting our innermost thoughts out there for anyone […]
Read MoreUpdate: Vivian passed away March 6th, 2020. Please send prayers to her family and donate for a cure. We want to introduce our first featured DIPG warrior, Vivian. Vivian Rose Weaver has been battling DIPG since February 1st, 2018. Her parents, Katie and Simon Weaver, and her younger sister Lucie fight tirelessly by her side. […]
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