When Dylan was diagnosed with DIPG on August 8th, 2018, my mind quit functioning properly. All my thoughts became centered on Dylan and her care and treatment. I had previously been dialed in to my diet and exercise and I instantly lost the brain power to worry about my food. Now that we are fifteen […]
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We wish we weren’t doing this. Not exactly the type of opening post they suggest in Blogging 101. But now that we’ve made you feel so welcome, let us explain. We wish we were humming along in our day to day lives, never giving a thought to putting our innermost thoughts out there for anyone […]
Read MoreUpdate: Vivian passed away March 6th, 2020. Please send prayers to her family and donate for a cure. We want to introduce our first featured DIPG warrior, Vivian. Vivian Rose Weaver has been battling DIPG since February 1st, 2018. Her parents, Katie and Simon Weaver, and her younger sister Lucie fight tirelessly by her side. […]
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Today marks one year since Dylan was diagnosed with DIPG. One year. I honestly didn’t think she’d still be here when we were diagnosed last August. I remember last August 7th and 8th so vividly. Going to the eye doctor to find out why Dylan’s lazy eye seemed to be getting worse. The eye doctor […]
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Today is the first day of brain cancer awareness month. On May 8th, it will be 9 months since Dylan was diagnosed with DIPG. In August, we were told that 9 months was the average survival time, but that wasn’t guaranteed, as many kids are not given even that much time. But here we are, […]
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