Dylan Update 1.3.20

Dylan new year's dipg update

Happy New Year! We had a nice, relaxing holiday season. Dylan had fun with all of her cousins and got her top requests of body wash and pajamas for Christmas. She seems to be holding steady, with regard to symptoms, and we head to Mexico again next week for treatment #2. It’s a long journey, but at least we know what to expect this time.

Dylan new year's dipg update


Time keeps marching on and we are about to hit the 17-month mark. I never thought we could be celebrating Dylan’s 6th birthday in February. Despite her mobility issues, she continues to keep us smiling with her sass and spunk. Our biggest hope for 2020 continues to be that she gets a chance at the CAR-T trial.

Thank you so much for your endless love and support!

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