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DIPG Warrior: Harlee Salmi

Written by Harlee’s mom, Taylor Salmi Harlee is one of the sweetest, most kind-hearted, and caring little girls we have ever known. She is our middle daughter sandwiched between an older sister and younger brother! She has always done anything to make others happy and help. 🙂 For Harlee’s 5th birthday, we had a birthday […]

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dipg warrior dylan update

Dylan Update 1.21.20

Things have been going well over the last week – Dylan lost her second tooth and had a fun hair appointment with her friend, Bridget. She continues to be holding steady from what we can see. She will be having surgery this week to have an ommaya catheter put in. This goes into her left […]

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Dylan Update 12.6.19

Dylan had an MRI on Wednesday – the pons is stable; however, nothing could explain some of the new symptoms she’s having.  Her oncology team believes it to be radiation effect and pseudo-progression.  Jeff and I aren’t really buying that, and time will tell.  We know her cancer is diffuse, so our hunch is that it’s active somewhere […]

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