We aren’t sure if it’s just us or if everyone that experiences tragedy feels this way, but there is a distinct “line in the sand” moment of our lives now. There is the “before Dylan was diagnosed with DIPG” and “the after.” Looking back, the before is so light and energetic. The smiles are so […]
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The day that Dylan was diagnosed with DIPG, by far one of the worst cancers out there, is the worst day of my life thus far. I can vividly remember those days in August 2018. I had an almost 3-month-old and was easing back to work from maternity leave. I also had a one-year-old and […]
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As I see kids with a new DIPG diagnosis, it takes me back to that hospital meeting room and I remember exactly what I felt at that moment. The shock and horror to learn your child has a terminal diagnosis. Now that we’ve been battling for over seventeen months (click here to read Dylan’s story), I thought […]
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Today marks one year since Dylan was diagnosed with DIPG. One year. I honestly didn’t think she’d still be here when we were diagnosed last August. I remember last August 7th and 8th so vividly. Going to the eye doctor to find out why Dylan’s lazy eye seemed to be getting worse. The eye doctor […]
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Today is the first day of brain cancer awareness month. On May 8th, it will be 9 months since Dylan was diagnosed with DIPG. In August, we were told that 9 months was the average survival time, but that wasn’t guaranteed, as many kids are not given even that much time. But here we are, […]
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