We have a 6-year-old!! So far, Dylan has had an amazing day, being spoiled by a constant stream of gifts and treats! The outpouring of love for our sweet girl is nothing short of amazing. Dylan perked up quite a bit towards the end of last week. We think she cleared the medications from Mexico. […]
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As I was perusing the Amazon generated playlist, “Your Top Songs of 2019,” I started thinking about the joy that music brings. So often, we start playing music in the house, and it doesn’t take long before a dance party breaks out and everyone is singing and having fun. Both Dylan and Mason love music […]
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Watching my daughter and several other six-year-olds practicing their leaps in ballet class, one can’t help but be filled with joy. They each have been given a little cone to jump over, turning this into a game and heightening the fun. The energy and exuberance in the room make me smile and laugh as they […]
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This video is from exactly three years ago: December 19th, 2016. Dylan was 2 (almost 3 as her birthday is in February) and was so excited about the pretty dress she received from Grandma. We wanted to post this video to show you the real Dylan. She has lost so much to DIPG, physically. You […]
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Dylan had an MRI on Wednesday – the pons is stable; however, nothing could explain some of the new symptoms she’s having. Her oncology team believes it to be radiation effect and pseudo-progression. Jeff and I aren’t really buying that, and time will tell. We know her cancer is diffuse, so our hunch is that it’s active somewhere […]
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We wish we weren’t doing this. Not exactly the type of opening post they suggest in Blogging 101. But now that we’ve made you feel so welcome, let us explain. We wish we were humming along in our day to day lives, never giving a thought to putting our innermost thoughts out there for anyone […]
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Today is the first day of brain cancer awareness month. On May 8th, it will be 9 months since Dylan was diagnosed with DIPG. In August, we were told that 9 months was the average survival time, but that wasn’t guaranteed, as many kids are not given even that much time. But here we are, […]
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