Note: This post is a continuation of Jamie’s journey with endometriosis and IVF Part 1. While the IVF round she describes here occurred in June 2018, she also addressed current infertility status as of December 2019 in this post. After going home and processing that we may not be able to have a child using […]
Read More
It may seem odd, but we are taking some comfort in the shutdown and pause the world is currently taking. We certainly don’t take lightly COVID-19 and it’s implications, and we are just as scared and worried as the rest of the world about it. But our lives have essentially been on hold since Dylan […]
Read More
Dylan continues to do ok – she’s hanging in there and we are taking things day by day. Because her pons (brainstem) seems to be somewhat stable, we decided to do 5 radiation treatments on her spine. This was strictly palliative and we finished a little over a week ago. She seems to have less […]
Read More
Several weeks ago, I had repeat labs to check the status of my FSH (follicle-stimulating hormone) and AMH (Anti-Müllerian hormone) levels. Click here to read my previous post about my initial labs and ultrasound. We rechecked these labs (with my functional medicine nurse practitioner) because we wanted to see if things were improving as more […]
Read More
We have a 6-year-old!! So far, Dylan has had an amazing day, being spoiled by a constant stream of gifts and treats! The outpouring of love for our sweet girl is nothing short of amazing. Dylan perked up quite a bit towards the end of last week. We think she cleared the medications from Mexico. […]
Read More
We spent last week in Mexico and Dylan received her 3rd treatment there. She had a rougher time with the treatment this time. They used the ommaya catheter and she seemed to have more of an inflammation response – headache, fatigue, etc. The travel was harder on her as well. She also began to complain […]
Read More
I vividly remember the day this journey began. It was the spring of 2017. I had healed from my endo surgery done in late 2015 and had been doing every diet, supplement, weekly acupuncture, reiki, and any other possible thing I could think of. I was ready to face that we needed the help of […]
Read More
We aren’t sure if it’s just us or if everyone that experiences tragedy feels this way, but there is a distinct “line in the sand” moment of our lives now. There is the “before Dylan was diagnosed with DIPG” and “the after.” Looking back, the before is so light and energetic. The smiles are so […]
Read More
The day that Dylan was diagnosed with DIPG, by far one of the worst cancers out there, is the worst day of my life thus far. I can vividly remember those days in August 2018. I had an almost 3-month-old and was easing back to work from maternity leave. I also had a one-year-old and […]
Read More
Dylan had an MRI yesterday in Portland. We put together this video to give a glimpse into her (and Casey and Jeff’s) day. It’s always hard looking at these pictures/videos, thinking of what Dylan is missing out on. We so wish she was in kindergarten with all her peers right now. However, we are also […]
Read More
