I am Jude, mother of these three amazing and beautiful sisters (I may be slightly biased). Not sure how I got so lucky but I am so proud of the women they have become, and I know I have not expressed this enough. The love and support they have shown each other melts my heart. […]
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As I was perusing the Amazon generated playlist, “Your Top Songs of 2019,” I started thinking about the joy that music brings. So often, we start playing music in the house, and it doesn’t take long before a dance party breaks out and everyone is singing and having fun. Both Dylan and Mason love music […]
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Things have been going well over the last week – Dylan lost her second tooth and had a fun hair appointment with her friend, Bridget. She continues to be holding steady from what we can see. She will be having surgery this week to have an ommaya catheter put in. This goes into her left […]
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Dylan came into this world as a force. She still is. When she started walking, it was with such purpose and “swagger” we nicknamed her honey badger. She always knew exactly what she wanted and went right for it. I am sure that having Mason as a big brother helped her with this also. Sister […]
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As I see kids with a new DIPG diagnosis, it takes me back to that hospital meeting room and I remember exactly what I felt at that moment. The shock and horror to learn your child has a terminal diagnosis. Now that we’ve been battling for over seventeen months (click here to read Dylan’s story), I thought […]
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We just returned home from treatment #2 in Mexico. Dylan again seemed to tolerate the treatment well, which was a relief. Spending a night in a Mexican hospital makes us appreciate the comforts of home. It’s clean and everyone is very nice, but it’s quite spartan. We are becoming better users of Google translate, which […]
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Watching my daughter and several other six-year-olds practicing their leaps in ballet class, one can’t help but be filled with joy. They each have been given a little cone to jump over, turning this into a game and heightening the fun. The energy and exuberance in the room make me smile and laugh as they […]
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Endometriosis (endo) affects 1 in 10 women. 1 in 10! That blows my mind. One main issue I have found is the lack of awareness of women, myself included, and health care providers. I find this incredibly frustrating. The symptoms and degree of pain vary immensely from person to person. I experienced an incredibly painful […]
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Happy New Year! We had a nice, relaxing holiday season. Dylan had fun with all of her cousins and got her top requests of body wash and pajamas for Christmas. She seems to be holding steady, with regard to symptoms, and we head to Mexico again next week for treatment #2. It’s a long journey, […]
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Sometimes podcasts can be a nice escape and joyful way to spend a mundane drive or laundry-folding session. We’re always looking for new podcasts to listen to, so we wanted to share some of our current favorites. We’ve included a few of our favorite titles, plus their podcast descriptions. From true crime to a kids’ […]
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