The six month mark came and went. Six months without Dylan. It still feels incredibly surreal. I look at pictures from years past and wonder how our beautiful, healthy daughter could be gone. We continue to put one foot in front of the other. Some days are harder than others. I relish the days that […]
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I am happy to finally be sharing more information about Dylan’s foundation and her memorial video. With the bakery changing its name to Dylan’s Cottage Bakery, it felt like the right time to honor our sweet girl. The pain of losing her is very raw, and she is missed so much. I watch this video […]
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I know we have been fairly silent. Thank you for respecting us and continuing to send your love and support. I’ve still been writing and I thought it was for myself, but if this is going to be what we started it as, I feel like I need to share. Please continue to give Casey […]
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Dear Harper, Penny has two sister cousins: you and Dylan. You were the first girl born on both sides of the family, at exactly eight weeks to the day before Penny. Then 7 months later, Dylan was born, and Penny was sandwiched on both sides of the family by girls. Girls that were so close […]
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One month down. Honestly, it has been a blur. It’s like time stood still and was on fast forward at the same time. I think I floated through the first week, then reality slowly started to sink in. I can’t even explain the pain of not having Dylan physically present with us. Jeff, Mason, and […]
Read MoreWritten by Harlee’s mom, Taylor Salmi Harlee is one of the sweetest, most kind-hearted, and caring little girls we have ever known. She is our middle daughter sandwiched between an older sister and younger brother! She has always done anything to make others happy and help. 🙂 For Harlee’s 5th birthday, we had a birthday […]
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Our sweet Dylan, love of our lives, passed away yesterday after a 20-month battle with DIPG. We wouldn’t wish this sorrow and pain upon anyone, yet we also have relief that she’s free from her broken body. We have no doubt she’s running, jumping and dancing now. We did promise to Dylan that we will live […]
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Dylan continues to do ok – she’s hanging in there and we are taking things day by day. Because her pons (brainstem) seems to be somewhat stable, we decided to do 5 radiation treatments on her spine. This was strictly palliative and we finished a little over a week ago. She seems to have less […]
Read More We spent last week in Mexico and Dylan received her 3rd treatment there. She had a rougher time with the treatment this time. They used the ommaya catheter and she seemed to have more of an inflammation response – headache, fatigue, etc. The travel was harder on her as well. She also began to complain […]
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We aren’t sure if it’s just us or if everyone that experiences tragedy feels this way, but there is a distinct “line in the sand” moment of our lives now. There is the “before Dylan was diagnosed with DIPG” and “the after.” Looking back, the before is so light and energetic. The smiles are so […]
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