The six month mark came and went. Six months without Dylan. It still feels incredibly surreal. I look at pictures from years past and wonder how our beautiful, healthy daughter could be gone. We continue to put one foot in front of the other. Some days are harder than others. I relish the days that […]
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I am happy to finally be sharing more information about Dylan’s foundation and her memorial video. With the bakery changing its name to Dylan’s Cottage Bakery, it felt like the right time to honor our sweet girl. The pain of losing her is very raw, and she is missed so much. I watch this video […]
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I know we have been fairly silent. Thank you for respecting us and continuing to send your love and support. I’ve still been writing and I thought it was for myself, but if this is going to be what we started it as, I feel like I need to share. Please continue to give Casey […]
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One month down. Honestly, it has been a blur. It’s like time stood still and was on fast forward at the same time. I think I floated through the first week, then reality slowly started to sink in. I can’t even explain the pain of not having Dylan physically present with us. Jeff, Mason, and […]
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Our sweet Dylan, love of our lives, passed away yesterday after a 20-month battle with DIPG. We wouldn’t wish this sorrow and pain upon anyone, yet we also have relief that she’s free from her broken body. We have no doubt she’s running, jumping and dancing now. We did promise to Dylan that we will live […]
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Dylan continues to do ok – she’s hanging in there and we are taking things day by day. Because her pons (brainstem) seems to be somewhat stable, we decided to do 5 radiation treatments on her spine. This was strictly palliative and we finished a little over a week ago. She seems to have less […]
Read More We spent last week in Mexico and Dylan received her 3rd treatment there. She had a rougher time with the treatment this time. They used the ommaya catheter and she seemed to have more of an inflammation response – headache, fatigue, etc. The travel was harder on her as well. She also began to complain […]
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The day that Dylan was diagnosed with DIPG, by far one of the worst cancers out there, is the worst day of my life thus far. I can vividly remember those days in August 2018. I had an almost 3-month-old and was easing back to work from maternity leave. I also had a one-year-old and […]
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Things have been going well over the last week – Dylan lost her second tooth and had a fun hair appointment with her friend, Bridget. She continues to be holding steady from what we can see. She will be having surgery this week to have an ommaya catheter put in. This goes into her left […]
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Dylan came into this world as a force. She still is. When she started walking, it was with such purpose and “swagger” we nicknamed her honey badger. She always knew exactly what she wanted and went right for it. I am sure that having Mason as a big brother helped her with this also. Sister […]
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