We just returned home from treatment #2 in Mexico. Dylan again seemed to tolerate the treatment well, which was a relief. Spending a night in a Mexican hospital makes us appreciate the comforts of home. It’s clean and everyone is very nice, but it’s quite spartan. We are becoming better users of Google translate, which […]
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Happy New Year! We had a nice, relaxing holiday season. Dylan had fun with all of her cousins and got her top requests of body wash and pajamas for Christmas. She seems to be holding steady, with regard to symptoms, and we head to Mexico again next week for treatment #2. It’s a long journey, […]
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This video is from exactly three years ago: December 19th, 2016. Dylan was 2 (almost 3 as her birthday is in February) and was so excited about the pretty dress she received from Grandma. We wanted to post this video to show you the real Dylan. She has lost so much to DIPG, physically. You […]
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Dylan had an MRI on Wednesday – the pons is stable; however, nothing could explain some of the new symptoms she’s having. Her oncology team believes it to be radiation effect and pseudo-progression. Jeff and I aren’t really buying that, and time will tell. We know her cancer is diffuse, so our hunch is that it’s active somewhere […]
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Today marks one year since Dylan was diagnosed with DIPG. One year. I honestly didn’t think she’d still be here when we were diagnosed last August. I remember last August 7th and 8th so vividly. Going to the eye doctor to find out why Dylan’s lazy eye seemed to be getting worse. The eye doctor […]
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Today is the first day of brain cancer awareness month. On May 8th, it will be 9 months since Dylan was diagnosed with DIPG. In August, we were told that 9 months was the average survival time, but that wasn’t guaranteed, as many kids are not given even that much time. But here we are, […]
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