The six month mark came and went. Six months without Dylan. It still feels incredibly surreal. I look at pictures from years past and wonder how our beautiful, healthy daughter could be gone. We continue to put one foot in front of the other. Some days are harder than others. I relish the days that […]
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I am happy to finally be sharing more information about Dylan’s foundation and her memorial video. With the bakery changing its name to Dylan’s Cottage Bakery, it felt like the right time to honor our sweet girl. The pain of losing her is very raw, and she is missed so much. I watch this video […]
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One month down. Honestly, it has been a blur. It’s like time stood still and was on fast forward at the same time. I think I floated through the first week, then reality slowly started to sink in. I can’t even explain the pain of not having Dylan physically present with us. Jeff, Mason, and […]
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Our sweet Dylan, love of our lives, passed away yesterday after a 20-month battle with DIPG. We wouldn’t wish this sorrow and pain upon anyone, yet we also have relief that she’s free from her broken body. We have no doubt she’s running, jumping and dancing now. We did promise to Dylan that we will live […]
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Dylan continues to do ok – she’s hanging in there and we are taking things day by day. Because her pons (brainstem) seems to be somewhat stable, we decided to do 5 radiation treatments on her spine. This was strictly palliative and we finished a little over a week ago. She seems to have less […]
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We have a 6-year-old!! So far, Dylan has had an amazing day, being spoiled by a constant stream of gifts and treats! The outpouring of love for our sweet girl is nothing short of amazing. Dylan perked up quite a bit towards the end of last week. We think she cleared the medications from Mexico. […]
Read More We spent last week in Mexico and Dylan received her 3rd treatment there. She had a rougher time with the treatment this time. They used the ommaya catheter and she seemed to have more of an inflammation response – headache, fatigue, etc. The travel was harder on her as well. She also began to complain […]
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Dylan had an MRI yesterday in Portland. We put together this video to give a glimpse into her (and Casey and Jeff’s) day. It’s always hard looking at these pictures/videos, thinking of what Dylan is missing out on. We so wish she was in kindergarten with all her peers right now. However, we are also […]
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Things have been going well over the last week – Dylan lost her second tooth and had a fun hair appointment with her friend, Bridget. She continues to be holding steady from what we can see. She will be having surgery this week to have an ommaya catheter put in. This goes into her left […]
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We just returned home from treatment #2 in Mexico. Dylan again seemed to tolerate the treatment well, which was a relief. Spending a night in a Mexican hospital makes us appreciate the comforts of home. It’s clean and everyone is very nice, but it’s quite spartan. We are becoming better users of Google translate, which […]
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