Written by Harlee’s mom, Taylor Salmi Harlee is one of the sweetest, most kind-hearted, and caring little girls we have ever known. She is our middle daughter sandwiched between an older sister and younger brother! She has always done anything to make others happy and help. 🙂 For Harlee’s 5th birthday, we had a birthday […]
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Our sweet Dylan, love of our lives, passed away yesterday after a 20-month battle with DIPG. We wouldn’t wish this sorrow and pain upon anyone, yet we also have relief that she’s free from her broken body. We have no doubt she’s running, jumping and dancing now. We did promise to Dylan that we will live […]
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We spent last week in Mexico and Dylan received her 3rd treatment there. She had a rougher time with the treatment this time. They used the ommaya catheter and she seemed to have more of an inflammation response – headache, fatigue, etc. The travel was harder on her as well. She also began to complain […]
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Things have been going well over the last week – Dylan lost her second tooth and had a fun hair appointment with her friend, Bridget. She continues to be holding steady from what we can see. She will be having surgery this week to have an ommaya catheter put in. This goes into her left […]
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We just returned home from treatment #2 in Mexico. Dylan again seemed to tolerate the treatment well, which was a relief. Spending a night in a Mexican hospital makes us appreciate the comforts of home. It’s clean and everyone is very nice, but it’s quite spartan. We are becoming better users of Google translate, which […]
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Happy New Year! We had a nice, relaxing holiday season. Dylan had fun with all of her cousins and got her top requests of body wash and pajamas for Christmas. She seems to be holding steady, with regard to symptoms, and we head to Mexico again next week for treatment #2. It’s a long journey, […]
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This video is from exactly three years ago: December 19th, 2016. Dylan was 2 (almost 3 as her birthday is in February) and was so excited about the pretty dress she received from Grandma. We wanted to post this video to show you the real Dylan. She has lost so much to DIPG, physically. You […]
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Here is the latest update on warrior Dylan- Dylan had her first treatment in Mexico last week – she tolerated things better than expected and now we wait to see if there will be any positive effects from it. We are set to return in early January for a second intra-arterial chemotherapy treatment. It was […]
Read MoreUpdate: Vivian passed away March 6th, 2020. Please send prayers to her family and donate for a cure. We want to introduce our first featured DIPG warrior, Vivian. Vivian Rose Weaver has been battling DIPG since February 1st, 2018. Her parents, Katie and Simon Weaver, and her younger sister Lucie fight tirelessly by her side. […]
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